EXTRACTS FROM LETTERS RECEIVED BY THE ASSOCIATION SINCE 2000
Thanks for the email. Yes I did see XXX. He was very helpful and I did sort out my problems. I now wear glasses and am very happy with them. I feel like a different person. I still don't really want to know about my kc but I'm sure in time I will come to terms with the condition. Thanks for your concern.
Thanks for all of your help. I know that Emily has felt better knowing that she is not alone in this, after all the information we have been able to gather for her this week. I wish we had found you sooner. It's great for her peace of mind to know that she can call and talk to you all.
I just wanted to take the time to say a big Thank You to you for all your help !! In the last few days I have in the first time in 4 weeks had some ease in pain in my eyes making life much better for me and my poor hubby (he's been so worried about me ). My panic attacks are much less and I'm sleeping better. Still finding the world's way to bright for me but that will get better. I have been so stressed with worry but now things are looking up...
I do have hydrops and i have got a couple of weeks to go with it... Your telephone call to take time from your busy day to call me and give the gentle nudge (which i so needed) to seek medical treatment has helped so much, after talking to you and having someone to chat with that understands made making the next step not so hard. Once again thank you
I have recently undergone my second corneal graft (i have now had both eyes done.) I recently was made aware of this site and after looking at it i have found it to be a very informative site about keratoconus as we do need to make public circles aware of this disease, so again congratulations on the site and good luck with future prospects.
Good news, Colby has had contact with various health offices and will need and have her corneal transplant in the new year, at no charge. Colby is so grateful for all your assistance as am I. Thank you from the bottom of my heart.
Thank you so much for this fantastic - and extremely prompt - reply. I am pleased to say that my friend has been to see his optometrist (who is apparently one of the best in Sydney and all is looking good at this stage. (Hmmmm it seems nagging does work!).
I am much relieved and thanks to you now have a much better understanding of keratoconus. Thanks again, I will not hesitate to come back to you should I need further guidance or information.
Thanks for the information regarding health funds and the best cover for kc. I realise it is quite a complex issue but am thankful for your time in giving me the info. It's great to have the association 'at our fingertips' when we have any queries, keep up the good work.
I really appreciate the time you have spent replying to my query and think it is great that there is a website for Australian's who suffer from keratoconus.
I would like to thank everyone involved with this foundation, especially for the information that was sent to me prior to the transplant surgery. The information booklets I received were very helpful and instrumental for me to be able to come to terms with the entire situation I am currently facing. I feel without this information and help it would have been a lot harder then it was/is to accept and live with my current circumstances. Once again thank you very much for your support and help, it has really been appreciated. When I return to work and start earning a wage again I will definitely be making a donation to the foundation, and I will definitely be making it an annual donation!
I very much appreciate the advice given to me by you several years ago and the referral to XXX. My vision and comfort using his recommended large single contact lens is great and seems slightly improved now even when I do not wear it. A much better solution than the risky and expensive surgery options being recommended to me up until that point. I am so grateful that you had a website and a contact number and were so willing to help, and I hope that you can continue to be there for others in the same predicament.
I would like to thank you for the help you provided for us with regards to finding the right specialist for my son's problem. He has a new lens fitted, which he can tolerate for the whole day. His sufferings with the old lens are over. I wish I'd learned about your organization and your work earlier.
Just a quick note to thank you very much for your detailed reply. It certainly has cleared quite a few things up and I happily forwarded it onto my sister to check out. It's not often you send one of these emails out and even expect to get an answer, so yours was much appreciated.
Thanks heaps for that information, it's been great to be a part of the support group and to obtain some useful experience from other people with this condition.
It's good to have the support of your association, and your own...I don't think many people really appreciate how debilitating this condition can be when the lenses aren't working properly.
I would also just like to compliment you guys on providing such a wonderful service, it's very inspiring.
I am unable to get to the seminar, however I thought I would write to let you know that I really do appreciate the work that Keratoconus Australia does do and that I will be looking forward to seeing the podcast. It seems like it will contain expert advice addressing some questions that I have been having difficulty getting answered to my satisfaction. Fantastic!
I thank you very much from the bottom of my heart. May god bless your organization.
Thanks heaps for the great information. It is so refreshing to know that there is support out there.
Many thanks for all your kind information and time. I shall make sure that she is well prepared. Kind regards from an extremely hot England.
Thank you for sending me the names of some optometrists and for our chat the other day. It was so good to get some positive news about keratoconus (like it doesn't lead to blindness and is likely to begin slowing down now due to my age). This was very relieving information to receive! And it is so good to know tat I am not alone with this condition. It's been a lonely, frustrating and scary journey these past 20 years.
Thanks for helping lift all these awful feelings, with simply a bit of information, and a kind word and some of your time. With much appreciation
Hi. The conversation we had the other day was more than just assisting, it was invaluable! I really thank you for taking the time to talk to me about my options and give me the concerning advice you gave. It means a lot to have someone to talk to who understands!