Supporting people with keratoconus

Avoid eye rubbing Vigorous rubbing of itchy eyes can trigger keratoconus and cause progression in an existing condition. Ophthalmologists say keratoconus may slow or even halt once you stop eye rubbing. Treat itchy eyes with eye drops, not eye rubbing.

6-12 monthly reviews Keratoconus is a progressive disease and can advance quickly in adolescents and young adults. Schedule a review with your eye-carer (generally optometrist/contact lens fitter) every 6-12 months. Incorrectly-fitted contact lenses can cause irritation and scarring. Crosslinking may be required to halt further progression.

Treatment and Travel Subsidies The cost of treatments for keratoconus is spiralling out of control. We have compiled a list of state-based funding schemes for vision related treatments  and clinics where these can be found. For regional and remote patients,  travel assistance schemes also exist to subsidise the cost of travel for treatment outside of your local area. Take advantage of these to get the best treatments

Patience is a virtue – for both patient and eye-carer Keratoconus is often frustrating for both patient and eye-carer. Fitting contact lenses can be very a lengthy and complex process and both parties need to be patient. 3-12 months of trial and error are not uncommon. Also, the right fit is not always possible and surgery does not always yield the desired result. Talk to your eye-carers before you start a treatment to understand risks and costs and what will happen if things don't work out as planned.

Vision failing? Don’t let Covid stop you seeing your eye-carer Keratoconus is progressive but can be halted if crosslinked early enough. If your vision is deteriorating, don't let covid stop you seeing your eye-carer